Showing posts with label Awareness work. Show all posts
Showing posts with label Awareness work. Show all posts

Friday, 3 May 2024

I wrote an article for The Metro!

I’ve just completed my first opportunity as a Storyteller for the disability charity Scope. The opportunity was to write an article for The Metro. At the moment it’s just online but it may go into print in their newspaper but that’s not for definite just yet.

I was asked to write about my extra living costs due to my disability, especially higher utility bills because of medical equipment that needs powering 24/7 and higher grocery bills because I have multiple allergies on top of my every day expenses and how this affects me financially. I also got asked about to write about how the proposed changed to Personal Independence Payments (PIP) would affect me if they were to happen in light of recent announcement.

Read the article on The Metro here.

Wednesday, 30 August 2023

Fundraising update

So far this year I’ve managed to raise £64.50. 

I’m quite proud of myself as I did take a two month break when I was moving.

I’ve now made a start on Christmas cards so I can pace myself making them as well as taking pre-orders. 

I’m excited to see what my total raised is at the end of the year and donating that to my two chosen charities: Smile for M.E. and Action for M.E. I’ve already decided to continue selling cards and fundraising next year but for some different charities, (I haven’t decided which yet) but I love having an excuse to make cards and support charities close to me at the same time.

More about my card project

Some of the cards available to buy

Tuesday, 17 January 2023

Fundraising for M.E.

After the success of my Christmas card fundraiser and after a lot of thought about it's do-ability I have decided to continue to sell my handmade cards and fundraise for two M.E. charities: Smile for M.E. and Action for M.E. (who I fundraised for at Christmas).

I had to think a lot about whether I should go ahead with the project and the way I done it this time I've set it up to be more M.E. friendly as how I did my Christmas fundraiser really crashed me. I also had to factor in my health and the fact that *hopefully* at some point I will be moving. However I think the way I've worked it I can alway make a notice to say that I'm taking a break for whatever reason.

I also did a lot of research and thinking into charities but deep down I felt that I wanted to support M.E. charities - everyone has their own charity or charitable area that is meaningful to them for whatever reason and though I do have other illnesses I feel a closeness to want to support the work of M.E. charities. This is partly because M.E. is probably the illness that affects me the most; I also know how overlooked M.E. is and how little understanding of M.E. there is as well as how little funding M.E. research and just M.E. in general gets.


Smile for M.E.

Smile for M.E. is a small UK charity and they send out 'Smile Parcels' to people with M.E. as well as care givers to people with M.E. They also hold special events such as for Carers Week and 'Merryn's Smiles' - special Smile Parcels to people with Severe M.E. in memory of Merry Crofts who sadly passed away from the illness. Smile for M.E. was started in response and in recognition of the isolation and loneliness people with M.E. often experience. You can find out more by visiting their website or checking out their Instagram.

I chose to support Smile for M.E. as it's a very small M.E. charity and I love the idea behind what they do because M.E. is such an isolating and lonely illness as especailly for some like myself with Severe M.E. I'm cut-off from the outside world as I'm mostly housebound. So when I was nominated as received a personified Smile of a few gifts to me it reminded me that I wasn't forgotten about and that I was loved and cared about. I'd like to help the charity by fundraising for them so they can buy gifts to include in Smiles and bring the same feeling to other with M.E. or those that care for people with M.E.


Action for M.E.

Action for M.E. is another UK charity that takes action to raise awareness of M.E. and to take on the ignorance, injustice and neglect faced by people with M.E. They also provide targeted information, support to health care services as well as providing advocacy work to people of all ages with M.E. The charity also works closely with professionals and policymakers to improve for people with M.E. access to appropriate care and and support. Action for M.E. also collaborates with scientists and clinicians to help more research forwards. For example the DecodeME DNA database study.

In the past I've collaborated with the charity to help raise awareness through videos and articles on their magazine.

The reason why I wanted to continue fundraising for Action for M.E. is because of the support they offer to people like myself with M.E. The charity provides a wealth of information and resource to people with M.E. of all ages, care givers, the public and professionals. They offer support and advocacy such as their 'Listen to M.E.' helpline - but it's open hours are limited and I hope that more funding will extend this to help reach more people with M.E. The charity also supports children and young people with M.E. Also at Christmas they run a project called 'Christmas Angels' which means a lot to me and like with the helpine I hope that fundraising will help to keep this project running.


Where to by cards?

You can buy cards through my shop Instagram account - there's an explainer on there about the project and how I've organised my cards and how they can be purchased.

Tuesday, 22 November 2022

My Christmas card fundraiser for Action for M.E.

Instagram post screen shot. Photograph of a caucasian young woman holding handmade Christmas cards. in the bottom corner is the hashtag fundraising Friday.
My Christmas card fundraiser has gone so so well! I'm so proud out myself for what I've achieve through this little project that I set out on not really expecting much. Its been wonderful to receive orders not just from friends but form strangers too!

In total I've raised £76! This will help Action for M.E. with projects like their Christmas Angels project, and their 'Listen to M.E,' support line as well as their other advocacy and campaign work helping to give people with M.E. a voice. It's a really special charity to me.

Last Friday I get featured in the charity's social media Fundraising Friday - see the post here.

I'm now no longer taking orders and I'm just working on this final order that I got asked to make 20 cards for. I've had some big orders - this is my second 20 card order and I've had one or two (brain fog is getting the better of me) orders for 10 cards then smaller orders such as 4 cards.

This is one quote I gave to Action for M.E. to to fundraising team:

“I feel incredibly proud of myself as it has been a challenge. It might not be running a marathon but for me this has been my marathon especially with my M.E. to deal with and it has been tough."

This is so true. With my M.E. this has been a fundraising challenge to get through orders as I'm limited with my energy and the time I can spend crafting. Usually I can only make one card a day, two at a push depending on what I'm making. Sometimes cards take even longer to complete especailly with me being a bit of a perfectionist, but I want people to love the cards that they've bought from me.

I hope this fundraiser shows people with M.E. that they can still fundraise but in smaller ways and I already have palsy to do something similar so watch this space! 

Tuesday, 8 December 2020

My Article in Action For M.E's InterAction Magazine

A couple of months ago I contacted Action for M.E asking if I could write something for their InterAction magazine, which gets sent out to members. I had a few ideas that I proposed to them and a few of them they liked and asked if I could merge them together and also if I was able to write a two page article. They also asked for some photographs to go with the the article.

The article touched upon living with severe M.E and how I've ben able to find ways to do the things I love - blogging and letter writing. I also write about friendships and the importance of staying connected with people and how for me I love letter writing and like with blogging how I've found ways to keep in touch with friends via letters. I also touch in the article on friendships.

An open magazine article. The heading is "I've found new ways to do the things I love". The main body of text is unreadable. There is a large photograph of a caucasian young woman with auburn hair in a braid wearing dark glass sat up in bed with a bed table in front of her with her laptop on the bed table. There is also a smaller picture od a laptop with my blog's webpage superimposed on the screen. Behind her is a notice board with colourful item pinned to it.

Friday, 5 June 2020

Opportunities I've taken part in for M.E Awareness Month

So I've been quite busy this month supporting the work done by Action for M.E and the M.E Association.

To start off with I took part in a short video with Action for M.E with two other people, Daisy and Simon, who both have M.E also using our expertise by experience in self-care and coping with the coronavirus lockdown.


As a result of the video BBC Radio Humberside got in touch with Action for M.E asking if I was up to being on their breakfast show so last Friday I did a prerecorded interview talking about M.E, why I decided to take part in the video and also M.E and the coronavirus lockdown.

The link to the radio show is here; it's about 17 ½ minutes into the show for the extended interview.
(Looking back I wish I spoken more about how M.E affects me personally rather than explaining what M.E is.)

Then earlier in the year I submitted my story to the M.E Association's M.E Awareness Campaign which their themes for this year are 'The Lost Years' and 'The Symptoms of M.E' and those have been shared on their website and social media. 

The link to my two articles are below:



#M.EandMe

This was an awareness event I put together myself. Each day something was asked about myself and M.E (and some days non illness related things). For example 'Who am I', 'The difficult aspect of having M.E', 'Happiness', 'M.E in one word', 'Myths and Facts', 'Friendships' etc.

Each day on Instagram I shared that day's response in an Instagram story. I saved them as a highlight. A link to my Instagram account can be found here.

Then on my blog here I went into more detail with my responses and published them as a weekly post: