Organisations & helplines

Here you’ll find a great resource list of links to various organisations and charities based around disability and different illnesses and symptoms. I’ve put which charities and organisations have helplines and in what form the helpline is. I’ve also put links to other resources such as books and shops and listening libraries, some of which can be accessed for free if you’re eligible.

Each charity, organisation etc title is a direct hyperlink to their website.

Disability


Chronic Pain


M.E. - Myalgic Encephalomyelitis 

  • The M.E. Association inc M.E. Connect helpline via telephone, email and social media -Membership available 
  • Action for M.E. - Online community forum, one for adults and another for under 18s - Membership available 
  • 25% M.E. Group - Membership available 

Hypermobility Spectrum Disorder & Ehlers-Danlos Syndrome 


Dysautonomia & PoTS


Headaches & Migraines 

  • Migraine Trust - Helpline - telephone & email
  • Ouch UK for those with Cluster Headaches - Helpline: telephone


FND


Bladder & Bowel


Mental Health

Helpline - telephone, email, web chat and post
  • Young Minds - variety of information both for young people and parents 
Parent's helpline- telephone & web chat


Helplines

Helpline- telephone, web chat, email and post
Helpline: Text ‘Shout’ to 85258 for support
Helpline - telephone & text
Helpline - telephone, email & post 
  • The Mix  - for young people under 25 
Helpline - web chat and text
  • C.A.L.M - Campaign Against Living Miserably - call, live chat, WhatsApp 
Helpline - telephone, live chat, WhatsApp

  • Childline (for children and young people) - resources on the website. Call 0800 1111 (Welsh and BSL also available).
  • Mind - infoline and text

In an emergency…

  • If you need help urgently please don’t hesitate to contact 999
  • If you are deaf or hard of hearing or have a speech impediment 999 can be texted on a registered mobile phone, you can also use a text relay services like this one to contact NHS 999 (and other emergency services), I use the app Relay UK which I’d recommend 

Accessibility Guides


Cards and gifts for people with chronic illnesses & disabilities

Photo of a hand holding up a yellow front paged book titled how to do life with a chronic illness


Books


Listening libraries 

Some of these services are free though your local library, such as my local library uses BorrowBox and the Libby Library app. Other services like Everand and Audible you pay a subscription to. The RNIB Reading Service is free to those who struggle to read print. Listening Books is also a subscription audio book library service for a small fee which may be wavered such as to those on a low income or with a print disability - this is where you struggle to read print such as due to a visual impairment or specific learning difficulty like dyslexia, or a condition like Irlens or you may find it had to hold a book or turn a page due to your disability.


Shops


Miscellaneous


(Updated 11 February 2026)
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