M.E - Myalgic Encephalopathy

What is M.E.?

M.E. stands for Myalgic Encephalopathy; it's an illness that affects 250,000 children and adults in the UK with 1 in 4 people being severely affected.

"Myalgic' refers to pain in the muscles (though people with M.E can experience other types of pain) and 'Encephalopathy' refers to a severe disorder of the brain.
"Although even in it's mildest forms it can have a significant impact upon the individual" - Action for M.E.
M.E. is much more than just 'simply feeling tired'. It is is long-term fluctuating neuro-immune disorder that affects many aspects of the of the body resulting in many different symptoms..

Individuals with M.E. will have severe pain and fatigue alongside other symptoms as well as Post-Exertion Malaise (PEM) which its the body's inability to recover after spending energy on even small amounts of activity.

Each individual is unique as with most illnesses and will experience a different level of severity as well as having different symptoms and recovery times.

Research has shown that individuals with M.E. can be measurably more disabled than those with MS." - M.E. Association
Unfortunately despite the number of people affected by M.E in the UK it still remains a largely hidden and misunderstood illness with more research greatly needed.
"A lack of understanding and awareness about M.E. means patients can experience disbelief, and even discrimination, from friends, family, health and social care professionals and employers" - Action for M.E

Some videos to help you understand M.E 


A general overview of the key symptoms 

  • Feeling generally unwell and 'flu-like' with flu-like malaise
  • Pain
  • Sleep disturbances
  • Cognitive dysfunction
  • Autonomic dysfunction
  • Digestive probems
  • Intolerances and hypersensitivity
  • Post Exertion Malaise or Post Exertion Neuro-immune Exhaustion

Helpful Links: