Things I've done

Action for M.E

Over the past couple of years I have done quite a bit with Action for M.E. 

M.E is a neuro-immune disorder though it affects many different parts of the body. In the UK 250,000 children and adults are affected; 1 in 4 of those like myself are severely affected. Despite having severe M.E I do what I can to help raise awareness of the condition and bring it into the spotlight.

'M.E and Me' - A video for M.E Awareness Month 2019

'Daisy, Naomi and Simon: Take every day as it comes' - Video

"Living with M.E. can often force people to become experts at self-care, careful planning, energy-management, learning to say no, living with uncertainty, coping with isolation… the list goes on.

We want celebrate this strength, insight and resilience. So we asked three people with M.E. to share their self-care advice and experience with the wider world." - Action for M.E

With the support of Action for M.E I wrote an article for the Royal College of Nursing on 'How nurses can support patients with M.E'

I also wrote an article for Action for M.E's December 2020 magazine about how I've found ways to still be able to do the things I enjoy despite having severe M.E. I mainly touch upon how I manage to blog and write letters as well as the subject of friendships when you have M.E.


The M.E Association

As well as working with Action for M.E I have also written some articles that are up on the M.E Association's website. I have also been featured in their podcast 'The M.E Show'.

'The ME Show Special – The Real M.E.' - M.E Awareness Moth 2019 (Link is to the podcast and it includes a transcript of the podcast too)

'ME is a cruel illness and whether we have it mild or severe, we all still suffer' - For M.E Awareness Month 2020

'These lost years have been a grieving process; a loss of a past life that seems so far away' - For M.E Awareness Month 2020


EDS UK

'Living With Pain' - For Pain Awareness Month, September 2020

The Mighty

I write articles for The Mighty - you can find what articles I've written here.

Other things I've participated in

Speaking on ITV Calendar about the changed to the Blue Badge (disabled parking permit) scheme.

'I've spent years in lockdown' - this was an article that I wrote for our local newspaper about how for me the lockdowns we have all been experiencing due to the coronavirus is experienced for much longer periods by those who are housebound due to chronic illness. I write about living with M.E and the challenges that I face as a result of the illness. There are some inaccuracies like referring to M.E as a 'chronic fatigue illness', but M.E extends far beyond just experiencing fatigue.