About me

Hi, I’m Naomi, I’m 32 and I live in the UK where I’ve always lived. I have several chronic illnesses and disabilities but Severe M.E. and Ehlers-Danlos Syndrome affect me the most. As a result I use mobility aids, crutches or a wheelchair. I have a care team to support and enable me to live my life as independently and as fully as possible.

I now live in my own little home, a little bungalow that is just perfect for me and it’s wonderful to now have a place of my own. Living with multiple illnesses/disabilities can be hard but I have some lovely PAs and community nurses who make it possible, some days are obviously inevitably better or harder than others. 

I love being creative and I’ll give most crafts a try. I love making card for my pen pals and volunteering with Cards2Warriors. I’ve also fundraised for charity in the past by selling my handmade cards too raising funds for different M.E. Charities.

Another hobby of my is pen palling. As great as a WhatsApp or funny animal video from a friend is nothing beats a letter in the post! I love how unique letter writing is and being so isolated because of my health and not having friends in person letter writing I find gives me that connection to the outside world - to read about other people’s lives and what they’ve been up to in their life. I have a big imagination so I think that helps. I love making each letter I send unique and I always love the idea of making postal workers smile with my pretty envelopes. 

As well as crafting I love books. One amazing thing is that I’ve regained the ability to physically read books again which feels pretty special. Since getting my Kindle it’s helped me to read books even more because I can make the book accessible to read. I love listening to audiobooks too which is still reading too, just in a different way. I like lots of genres young adult, memoir/autobiographies, true crime, psychological thriller, feminist nonfiction, science/medical nonfiction, disability fiction/nonfiction and more, as well as poetry too.

One of my favourite things to do and it’s my happy place is when I go for rides on my Batec. It’s probably the best pieces of equipment I’ve ever bought. It’s and electric add-on for my wheelchair, it just clips onto the front of my chair and then I zoom off!

Other things about me are:

• I’m a Quaker
• Lavender, dusky pink and turquoise are my favourite colours 
• I love glitter (which I think should also be a colour)
• Rainbows any time!
• I have far too many rolls of washi tape
• I also daren’t count how many bottles of nail polish I own!
• My cute animals are sloths and koalas - I’d love to cuddle them both one day
• I’m a Storyteller for the disability charity Scope
• I love Grey’s Anatomy 
• I’m an avid pen pal writer