Tuesday, 9 February 2021

My Apple Watch

Photo of an Apple Watch. The strap is pink braided. On the digital watch face is the time, date, a calendar event and app symbols.
For Christmas there wasn't anything that I really needed especially as I'm trying to slowly declutter, especially when it comes to craft and stationary. I did however need a new watch and I settled on the idea of an Apple Watch already having an iPhone and happy with the Apple products that I own.

Originally I was going to get the gold watch with the dusky pink strap but taking my Dad's wise fashion advice I went for a silver case instead. Also instead of getting a buckle strap I decided to go for the braided solo loop - a choice that I'm glad I made as it is so comfortable.

My watch arrived sooner than expected which was an exciting surprise and the set up was super easy.


Apps

Not all of the apps on my phone are available on the Apple Watch but the apps that I do have on my watch is a good variety including fitness, medical, mindfulness, audio, home tech, memos, weather and news amongst other miscellaneous apps.

Medical

Medically I do find the app very helpful. I really struggle with my memory so having reminders, timers and alarms on my wrist which I can't put down and forget really helpful; for example to contact my Link Worker, take medication or make note of any PRN medication, track my fluid intake or putting a timer on an activity so I can ensure that manage my activity levels within my limits.

Though not a medical device and it's not designed to be one my watch comes with an ECG, blood oxygen measurement and heart rate monitor.

It also has a sleep tracker and during the night it monitors my heart rate and blood oxygen levels; it also does this periodically during the day and during any exercise.

What I find helpful is that it will alert me if my heart rate gets too high or too low and if my bold oxygen levels get too low.

There is also a falls detector and if it notes an impact where I remain still you can have it set up to contact the emergency services. There is also a function where you can contact the emergency services. And like with my iPhone my Medical ID Info can be accessed.


Fitness

This is one downside to my watch as being fairly immobile I've found the inbuilt activity monitor a little obsolete and at times inaccurate. For example when I have a seizure it falsely notes this as activity and when I first got my watch I set it to wheelchair mode (as opposed to noting steps) and I found that it noted that I'd made propelling motions pushing my wheelchair when I hadn't.

I can switch it between walking and wheelchair mode so once I am able to go out I'd ben interested to see how it notes my wheelchair usage.


Watch faces

Photo of my Apple Watch. The strap is pink braided. The watch face is now different to the pervious photograph and now shows a digital analog clock with a pink and orange kaleidoscope watch face along with the date along the bottom of the round clock face.

There is a wide range of watch faces to choose from. The main watch face that I have visible is the one pictured above as I find digital clocks easier to tell the time (though I can use the Taptic time or ask Siri to read the time aloud). I also like having easy access to the apps that I use the most. However I can swipe across to see other watch faces like this moving kaleidoscope watch face.

Battery life

The battery life on this is fantastic, partly because I don't have the watch face permanently on. Occasionally I can go over 24hrs without needing to charge it! It charges quite quickly and I generally tend to charge it when I'm having my 3-4pm rest period as I need enough charge for it to last the night to allow it to monitor my sleep.

Miscellaneous inc Pros and Cons

Sometimes it can feel a hindrance having notifications pinging on my watch all the time as even the apps that I can't access on my watch for example Instagram I still get notifications about through my watch but that can easily be rectified but putting the do not disturb mode on. 

I like that it syncs with my phone for example receiving messages and be able to make telephone calls. 

One downside is that if my phones dies so the the syncing with my watch so I'm unable to make or receive phones calls for example.

I like easy access to apps like being able play a podcast or mindfulness meditation but it requires my wireless headphones as it doesn't play out loud unlike with telephone calls which play out loud and have a receiving speaker.

I do like the 'Breathe' app which is a 1 minute breathing exercise which I find helpful when I start to feel anxious, 


Accessibility

This was something that was putting me off getting a smart watch but on my watch I do have the large and bold text options turned on as well as magnification and for some things like messages and the time I can get Siri to read things aloud.

The photograph shows a text I sent to my Dad with the magnification turned on which I can do with two taps of my fingers and then I can move the screen around to read the screen. The magnification level can be increased or decreased. I could increase it more but the setting I have it on is comfortable enough to be able to use my watch whilst also being able to move the screen around to see/read the screen.

This was one thing [visual accessibility] that was putting me off getting a smart watch but to be honest one this I do like about Apple is how accessible their products are compared to when I've used other technology brands so Apple is the brand I'm drawn to for that reason and just like my other Apple products my Apple Watch lives up to being pretty accessible.


Final thoughts

There is much more that I could say about my Apple Watch. There are cheaper smart watches available but personally if you have an iPhone already and you're thinking of getting a smart watch I would recommend looking into getting an Apple Watch.

All-in-all and personally I do throughly love my watch and it feel that it was a great thing to ask for help buying one for Christmas.

Monday, 1 February 2021

February's Monthly Make - Macrame Keyring with video

This month's crafty tutorial make is a macrame tutorial.

Difficulty level ★ ☆ ☆ ☆


What you'll need

Cord/string

In the video I used Heptique 1mm hemp cord and 2mm waxed cotton cord but you could use any cord or string really; I've use parcel string in the past to make a hanging plant pot holder. 

Beads

I bought Craft Planet wooden beads; they cam in an assortment of colours, sizes and styles and I've found them to be good quality. 

➜ Key rings

You could use ordinary split rings or you can get ones with a clasp and loop or D-ring

➜ Scissors


Video tutorial

Tuesday, 26 January 2021

6 Tips for Coping with Pain

Living with being in a permanent state of pain can be really difficult to cope with, not just physically but emotionally too. It can also be very limiting at times but I have found ways of living with both chronic and acute pain and here are a few tips I would like to share with you on what help me cope with my pain...

1. Distraction

A caucasian woman with brown wavy hair wearing white headphones holding a cup with and open book in form of her

I find distraction one of the most helpful tips to cope with pain. Depending on my level of pain and how limiting it is on my body varies.

Sometimes distractions can include listening to something such as music, a podcast, mindfulness meditation or an audiobook. Or if I'm able to I'll read a book or magazine or my Happy Newspaper - whatever you find myself getting lost in.  Other times I find just simple games on my phone are a good distraction. - I particularly like 1010!, 2048, Angry Birds Friends, card games, Sneezies, Sneezies Match and Two Dots. When I'm more able I enjoy colouring and word puzzle books or doing a jigsaw puzzle.

Try to find what works for you as everyone has their own things that they find helps to distract them so don't feel discouraged if you try something and it doesn't help. Keep trying until you have your own distraction toolkit which you ca extend and use in different situations alongside times when you are experiencing pain.


2. Rest

A caucasian woman with brown hair laid in bed with green bedding

I find taking time out of the day to rest or having a restful day helps when I'm in pain, especially on bad pain days It's okay to have a PJ day in bed or on the sofa if that is what your body is telling you that is what you are in need of.

If I can I usually cancel plans and if possible I'll also cancel plans and medical appointments to allow me to have a rest day. 

Rest is a form of self-care and part of self-care is listening to your body in what it's telling you what it needs and quite often for me that is taking time-out to rest to allow my body to recover.. 

My friend has this saying "just keep swimming, but if you can't swim just float". When I'm in pain I know that in that moment it's okay to just float and rest and do little as possible. It's about giving my body time to heal. Sometimes I find I need to have a nap so don't fight having a nap if you feel you need to have a sleep. 

When I talk about 'rest' some people think that resting is doing something like watching TV, but this is still a stimulating activity. To properly rest you need to switch of your mid and your body. Personally I find laying any listening to relaxation soundscapes help my mind and body feel more rested.


3. Mindfulness

This one goes sort-of goes along with the theme of rest. I find mindfulness really helpful for my pain. Within mindfulness there is a selection of varieties. I personally prefer visualisation such as around a secret garden or going through the colours of the rainbow or breathing exercises but I personally find that things like progressive muscle relation aggravates my pain but it might work for you. There are a variety of mindfulness apps most have a selection of free versions but you can upgrade if you wish. YouTube also has a selection of mindfulness videos too.


Two caucasian women both wearing striped topped giving each other a hug
4. Friends

I've found that friends who understand (a) are the really good friends in life and (b) they can help you through difficult times. Such as when you're going through a pain flare. 

A good friend is someone you can sound off to about your health difficulties or to talk to about non-health related things to help you take you mind off your pain. 

Friends really helps as when you live with chronic pain, (often accompanied by other health problems) as they let you know that you are not alone, This is especially the case if they too have chronic health problems but even really good friends who don't have health problems can still be as equally supportive.


5. Pinterest

I find getting lost on Pinterest searching for new crafts or hand lettering to try, envelope art,  blog post ideas or building my own dream house really good for taking my mind off my pain and it's a fairly low-key activity. I find Pinterest a fairly easy things to do that doesn't require too much mental exertion but it's still stimulating enough to keep me occupied for a while. when I'm needing to take my mind off my pain.


6. Heat

A women wear a pink dress holding a hot water bottle to her stomach. The hot water bottle is blue cover with a cloud design on it.

My last tip that I find helps me cope with pain is heat. This could be an electric heat pad, a hot water bottle or wheat heatie. I find heat really soothing when I'm in pain and medically they do advise to apply heat to the area in which you are experiencing pain. You can get some really nice hot water bottle covers, or you could even make your own if you really wanted! 

* Always use hat water bottles with caution *

If hot water bottles aren't suitable for you for whatever reason, (like for me I cannot make up a hot water bottle myself due to my seizures) there are plenty of alternatives to hot water bottles. I have some lovely cuddly microwave heat packs for example I have a dinosaur heatie and I have an electric heat pad too.

Tuesday, 19 January 2021

What I've been loving lately

Let's say that things aren't so great at the moment and we're also in our third lockdown but aside from the negativity that's going on in my life and further afield there have been things that I have been loving lately...


Letters from Pen Pals & Friends

Receiving mail never fails to cheer me up and equally I love sending mail too. It's equally as lovely to her from the people I'm in regular touch with as well as people that I here from every so often. Once again my notice board as big as it is if filling up fast again with the things I received in the mail. Aside from the letters are the messages I get from friends over text, WhatsApp or Instagram and I now feel that the people who are in my life now are a really good

Jigsaw Puzzles

With a little help from my Dad and stepmum I've completed a 1,000 piece jigsaw puzzle. I love doing jigsaw puzzles but they can be a challenge to do but when I in the midst of doing a jigsaw puzzle  always remember how much I love them so I've set myself the challenge to do another.

My Apple Watch has Arrived!

For Christmas I asked for some money towards an Apple Watch. I was needing a new watch as my medi watch died and I thought that a smart watch would be a good up upgrade as it would help me through it's reminders and alarms and timers and having access to my calendar etc. I've only had it a short while but so far I'm in love and I'm glad that changed my mind on what watch I was going for; instead I've gone for a silver case which I now see as being more universal in terms of matching outfits and I've going for a fabric stretchy 'solo loop' strap and it's really comfortable and I don't have a buckle in the way.

Organising my Blog and YouTube Channel for the Year Ahead

I've already started planning posts and what videos I might be doing and researching some new ideas and taking inspiration from Pinterest as well as other bloggers and YouTubers. I got a bullet journal kit for Christmas so I'm using that as my planning book.

Positive Appointments

For the professionals that I am in touch with at the moment I feel so grateful for their support. The appointments/contact I've been having recently whether they're consultant/nurse appointments I have every 6/12 months, more regular appointments or just contact from a clinician these appointments and contacts have been going well and I feel supported and like we're heading in a good direction despite the fact that the majority of my care is on hold because of the coronavirus situation.

Cuddles with Flop

Cuddles with my guinea pig Flop is always something that I love especially when he gets really talkative and nestles into my arm.

Wire Headbands and Braids

I came across wire headbands as a disability hack so I bought one to try them out and I am loving them. They are so easy to put on and they look super stylish and there are so many online to choose from that I may have to order myself some more.

I'm also loving braiding my hair at the moment and I've learnt a few new hair styles some from my friend Bex's YouTube channel. Braiding my hair help keep it out of the way and from getting knotty especially as I desperately need to go to the hairdressers and haven't had it cut for nearly 18 months! But also because it only gets washed once a week as I rely upon my Dad to wash my hair at the moment.


Three images. To the left is a black, white and tan guinea pig being held in someone's arm, on the middle is a completed jigsaw puzzle showing illustrated images of Moomin characters, the image on the right is an open plain canvas bag with stationary items and coming out of the canvas bag is a book.

Tuesday, 12 January 2021

A big thank you to Smile for M.E

Last Friday I received a surprise in the post... A parcel from the charity Smile for M.E.

Smile for M.E began in 2012 with Alice (who has M.E herself) her friend Grace and the support of their families. Their aim is to bring a smile to people of all ages affected by M.E as well as carers and family.

In my parcel from Smile for M.E I received a lavender microwave heatie zebra, a pair of very cosy fluffy socks, a Moomin colouring book and some felt tip pens. 

What was chosen for me couldn't have been any more perfect and I am so so so grateful for my parcel. I've been wearing my socks every day and my heatie zebra has been helping me with my pain as well as providing me with lots of cuddles and I hope when I'm able to to do come colouring.

For me living with M.E is very isolating; not just feely physically or socially isolated because I'm housebound but I often feel forgotten about. I am hidden away from the world and most professionals don't know how to help me or the care/support that I need isn't available (only made worse by the coronavirus situation).

Letters from pen pals and friends go a long way and projects like Smile for M.E help me feel remembered; like I do exist and I am thought about and that I am cared about and that I do matter in this world.

To find out more about Smile for M.E click their logo above. On their website you can also find the nomination for if you know someone with M.E who would befit from a Smile.

Friday, 1 January 2021

January's Monthly Make - Origami Butterfly with video

This month's make is an origami butterfly which you can either use as a decoration or as a bookmark.

Difficulty Rating ★ ☆ ☆ ☆ - Beginner


What you'll need

  • Double sided origami paper
  • Ruler
  • Pencil
  • Scissors

Tuesday, 29 December 2020

Christmas reflections & New Year

I truly had a lovely Christmas. With COVID this year it's been much more low-key which I've preferred and it made it more manageable for me. 

Normally during the day I have regular rest periods but with how the day worked out I wasn't able to have them, but I did have one longer rest period in in the afternoon and by about 7pm I was shattered. 

It was lovely to be with family especially as so many people spend this time of year alone. I do enjoy family time but equally I like my quiet alone time. 

I feel so grateful for all the gifts I received from family and friends and my notice board is looking very festive with the cards that I received. I also received money towards buying an Apple Watch so I'm super excited to order that when I can!

I hope everyone reading this had a lovely Christmas too whatever you got up to and if you don't celebrate Christmas I still hope that you had a lovely day.

Going forwards into the New Year is difficult for more. For new me New Year isn't about 'new year, new start, new me' as Georgina put in our YouTube video collaboration. For me New Year makes me feel stuck; another year gone where I've been ill and another year ahead of still being ill and my life probably not going far forward. I do hover now feel better equipped in many ways. I have the knowledge that I learnt in hospital, I have some really good professionals in my care team, I have my faith and I have some amazing friends and people in my life. As hard as it can be sometimes it's trying to find the negative in the positives as I wrote about in my mini Positivity Series here on my blog. I also have plans for my blog and YouTube

So as hard as my life can be I do feel that despite all the challenges I face there is a lot of good and hope in it all in terms of moving forwards into next year..

Tuesday, 22 December 2020

Tips for coping with the holidays

The holiday's can be a challenging time for many people with all sorts of illness, disabilities or impairments. This post comes from my experience of living with physical chronic illnesses. I also write from having lived experience of having difficulties with my mental health and on top of that also having autism. So with a combination of all those things Christmas and New Year poses many challenges for many different reasons both physically and emotionally.

Here are some of the things I find help me cope with the Christmas and New Year period that I feel might help others too:


Ensuring you have enough medication & medical supplies

A rainbow pill organiser with a variety of different pills
This is very important especially as over the holidays your GP my be on holiday or your GP Practise may close for the holidays along with other services so it's very important that you ensure that you have enough medication and medical supplies to see you through he holidays.

Making a schedule

From when I was in hospital I developed with the Occasional Therapist a 'Daily Plan' which is a schedule for my day with set times for rest, activity, meals, physio etc. I normally keep to this as much as possible with the odd adjustments which I'll do for the holidays. You may already have something like this, or you may already have a calendar, planner or diary or you may want to create a document on your computer specifically for the Christmas and New Year period. 

On this I'd suggest putting on your schedule events that you are going on that you are going to such as Christmas dinner, games night, when you'll have or go and see friends and family, when you'll be opening presents etc. From there you can then plan rest periods, time to yourself, when you get washing and dressed etc - whatever is relevant to you and what you need to plan for to help manage your symptoms.

I've also made a timetable for Christmas card and gift wrapping and what needs positing to help me keep on track but also to pace myself with this activity and also to ensure that I've got everyone's gifts and that I also don't forget to wrap something.


Make yourself a safe space where you can retreat to for time-out

Photograph of a blanket fort with blankets draped on the ceiling with fairy lights and pillows on the floor
For me this is my bedroom and I find having a place to retreat to when I need to rest, or I'm in need of somewhere calm or familiar really helpful for my mental health. It's my 'safe zone'. (Unfortunately I'm unable to build myself a blanket fort as in the picture I chose.) 

You might want to add things your safe space such s things that you find comforting or calming such as creating yourself a self-care box*. 

Having a safe space of place set aside can really help you emotionally as it's a place to retreat to when things become overwhelming for example or you're just needing some self-care space and alone time away from hubbub of the house.  

* Link it to a blog post I wrote with a list of 30 things to put into a self-care box


Knowing it's okay to sit out of events

Often you can feel like your missing out if you don't attend certain events. If you know what events are happening you can prioritise and plan which ones you can attend and with your schedule you can plan things like saving up your energy levels or ability to eat. or manage any other symptoms that you experience. Also know that for some events there is always next year.

Try not to feel guilty or rude for not attending particular events; it is an act of self-care and it allows to to pace yourself out to get through the holidays.


Noise cancelling ear plugs/headphones

If you're like me an you struggle with sensitivity to noise I would defiantly recommend purchasing some noise cancelling ear plugs/headphones. I find if I'm needing time-out, needing to rest it helps to shut out the noise around me (especially if there is a noisy event going on). 

Tip: when purchasing noise cancelling earplug/headphones find ones with a high decibel dB cancellation or NRR - Noise Reduction Rating

Make a list of coping techniques

Coping techniques are different for each person and what may work for one person may not feel beneficial to someone else.

Some of the coping techniques I find help me are:

  • Caucasian woman with brown long hair and a blue t-shirt she is laid in bed with her hands behind her head her eyes are closed and  she is wearing white headphones
    Mindfulness
  • Planning ahead 
  • Making 'Now & Next' plans
  • Engaging in self-care
  • Setting boundaries
  • Taking time out
  • Using the 5 Senses technique
  • Breathing exercises
  • Spend time being creative
  • Being gentle, patient and generous with myself
  • Listening to music
  • Telling myself that whatever I'm experiencing/feeling will pass
  • Taking time away from social media/technology
  • Visualisation

Tuesday, 15 December 2020

FFORA Product Review

FFORA are a brand that design bags, cupholders and tumblers that go with a magnetic attachment system that attaches to your wheelchair.

From FFORA I got the Essentials Bag Plus with the silver (Nickel) pebble which comes in black, the Essentials Bag in electric blue, the cupholder in white and silver and silver tumbler and the attachment system also in silver. (I like to coordinate myself)

Collage of photographs of my FFORA product on my wheelchair including the black Essentials Plus bag and another of this bag but showing it from the back attached to the attachment system, a photograph of the white cup holder with the silver tumbler in place, the silver attachment system and also me (sat in my wheelchair) bending down unzipping using the zip loops on my blue Essentials Bag

Check out the FFORA Website

Bags

I love being able to choose between my two bags to go with my outfit. They're a good size to keep my essentials bits and bobs in (see my video on what I was able to fit into my Essentials Bag - it was quite a lot!). I still do need my other bags which attach to my wheelchair unless I'm travelling light. I see my bags more as a giant purse.

What I like is that normally I keep my purse in the bag that is behind my knees (I don't keep it in my handbag that attaches to the back of me wheelchair for security). But I find bending down and then having to search for my purse quite difficult as I don't have much core strength. So when I went to the Post Office (I travelled light on this occasion). It was super super easy to just pull my Essentials Bag Plus up and un click it from the magnetic attachment system to get my letters out of the back section and to access my phone to pay for my postage and stamps and the then to easily click my bag back in place. It also felt really nice to choose the bag that went with that day's outfit and it felt nice to accessorise and include my wheelchair in with my outfit.

On the Essentials Bag Plus you have a loop at the top of the bag and inside in the main section you have space for your cards; some hidden pockets (which I've used to put in some medical information), then a purse section and two compartments then it's deep to put other essentials in. Then in the back section it opens out to put other bits and bobs in.

The Essentials Bag is very similar except it's a bit smaller and it doesn't have the loop and you just have one compartment behind the zipped purse and just one hidden section behind the card slots. Then on the bag it's smaller to just be able to slip your phone in and a face mask.

The Essentials Bag comes in different colours. I was a bit torn between the blue bag and the pink bag but I though the blue would go with denim which I wear a fair bit. The Essentials Bag Plus just come in black. 

All the bags come with a magnetic pebble on them and to attach it to the attachment system it just very easily clips on and off. The bag also come with a cross-body strap which is great from people like myself who are ambulatory wheelchair users, or for when your in the car and then going to transfer into your wheelchair. I also though that it would be great for being ale to wear your bag when you're sat in your wheelchair if your using your attachment system is in use with your cup holder and tumbler to save you having two attachment systems.

The design feature I love most about these bags is that all the zips come with big zipper loops which is great for people like myself with limited hand function as the zip loops makes it a lot easier to be able to open ann close my bag if my hands are in spasm or if I'm wearing my splints etc.

The bags come in a fabric bag which I'm using to store them in to keep them nice when they're no in use and sat in my bag storage box.


Cup Holder & Tumbler

This cup holder is a solid ring (I thought I was squidgy silicone until I opened the box. Again it has a magnetic pebbled that clicks onto the attachment system. As it's ridged not everything fits in it. My FFORA tumbler obviously fits it and some of my other lidded mugs but unfortunately my water bottle is too slim to fit in.

The tumblers come in 3 colours (Nickel/silver, Champagne/Pale Gold and Midnight/Black - it now also very recently comes in white) and I went for the silver tumbler. The lid is ver spill proof and it comes with a straw. Again like with the big zip loops on the bags I'm not sure if the tumbler includes a straw because some disabled people like myself require straws to drink with or FFORA are just offering a plastic straw as an alternative to the paper straws now offered in cafés. The tumbler is very insulated; if I want to drink my coffee straight away I have to put in plenty of cold water. The size of the tumbler is also pretty big which I like.


Attachment System

The first thing I want to say about the attachment system is the brilliant design of the allen key that I needed to attach the attachment system to my wheelchair. The handle was a giant metal loop (you can see this better in the video) so design wise it's extremely accessible for people with limited hand function like myself and I was able to very easily use this on my own. Normally with things like screwdrivers etc I have to get someone else to do it for me.

The attachment stem has rubber guards to protect your wheelchair and you get two spares of these. The attachment system comes in 3 colours - Nickel/silver, Champagne/Pale Gold and Midnight/Black.

It's very simple and easy to attach and comes with instructions. Both the attachment system and cup holder where presented in a really nice box which was a nice touch. I ensured it was on tight but I didn't fully tighten it to allow me to be able to reposition my bag when it's clipped in so I can reposition the angle the bag is at on my wheelchair.


Downsides & Design Suggestions

To make the bag more accessible like FFORA has done with the hand loops it would be helpful to have bigger clips on the cross-body strap as they're a little too small and fiddly especially if you don't have brilliant hand function.

My design suggestion it would be nice to see the Plus bag also in a brown/tan colour and the for the Essentials bag to see it in a brown/tan colour, an aubergine sort of colour and maybe some toned down colours as currently they're all quite bright colours at present. It would be also nice to see the active bags in other colours too other than white and black.

I also think that it would be good to have wider availability of these bags to countries other than the USA and Canada as the products are so fantastic, helpful, fashionable as well as functional for wheelchair users it would be good to offer the bags to other wheelchair users in other countries too.

The white Active Bag had been out of stock in the UK for quite a while.


Positives

The bags are great for ambulatory wheelchair users due to the fact that they come with a detachable cross-body strap.

Though I did suggest some additional colour options there is still a good selection of bags to choose from. 

The selection of Nickel/Champagne/Midnight for the attachment and magnetic pebbles though small is a good choice selection and I like how they've now added a white tumbler. (I probably would have chosen this if it was available at the time).

They are now adding a water bottle and bottle holder to their collection, I'm keen to order one but I'm waiting for them to get round to designing more accessible lids on the water bottles which they are in the process of doing.

I love how many features have been designed with accessibility in mind and for those with limited hand function and also including a straw with the tumbler.

Taking things like the bag and cup holder off the pebble is so so easy - no having to fiddle around to detach and attach.

I like how deep the bags are so you can fit quite a lot of your essentials in the bag (see the video and I've done a clip showing how much I was able to fit into my Essentials Bag).

Screen shot of FFORA's website where you can search for you brand and model of wheelchair to see if the attachment system is compatible with your manual wheelchair
It's really nice to be able to decide which bag of mine to choose from to go with my outfit. It's also really helped my confidence to feel able to include and accessorise my wheelchair by having my bag on their that goes with my outfit that is attached to my wheelchair.


The attachment system will fit most manual wheelchairs (over 180). Just go onto the FFORA website and scroll to the bottom where you can search for the brand and model of your wheelchair. If you don't see your wheelchair you can contact FFORA below the search.

The postage costs are also really good.


Video Review on my YouTube Channel


* This is a sponsored promotion by FFORA who gifted me some of their products

Tuesday, 8 December 2020

My Article in Action For M.E's InterAction Magazine

A couple of months ago I contacted Action for M.E asking if I could write something for their InterAction magazine, which gets sent out to members. I had a few ideas that I proposed to them and a few of them they liked and asked if I could merge them together and also if I was able to write a two page article. They also asked for some photographs to go with the the article.

The article touched upon living with severe M.E and how I've ben able to find ways to do the things I love - blogging and letter writing. I also write about friendships and the importance of staying connected with people and how for me I love letter writing and like with blogging how I've found ways to keep in touch with friends via letters. I also touch in the article on friendships.

An open magazine article. The heading is "I've found new ways to do the things I love". The main body of text is unreadable. There is a large photograph of a caucasian young woman with auburn hair in a braid wearing dark glass sat up in bed with a bed table in front of her with her laptop on the bed table. There is also a smaller picture od a laptop with my blog's webpage superimposed on the screen. Behind her is a notice board with colourful item pinned to it.

Friday, 4 December 2020

Vlogmas 2020

This year on my YouTube channel I'm giving Vlogmas a go - you may have already noticed this on my blog's Instagram @agirlcallednaomi_blog.

I'm not going to do a video every day as that would just be impossible for me to do due to my health. Instead I'm going to aim to do a couple of videos a week (also incorporating my usual YouTube posts as Vlogmas posts like I did with my decopatch 'Monthly Make'). So ideas of 'Vlogmas Day One' I'm naming my videos 'Vlogmas Video One' instead.

Some of the this I hope to do are some chatty videos (and hopefully a collaboration if I can), managing the holidays when you have a chronic illness/disability/mental illness, Christmas crafts, Christmas BSL signs and more.

To keep up-to-date with my Vlogmas videos I'd encourage you to subscribe to my channels. If you have any ideas for videos just comment below or on my Vlogmas videos or alternatively as a DM on YouTube.

To view the videos with subtitles or on a bigger screen or to subscribe to my YouTube channel click on the video and it will take you to viewing the video on YouTube.

Click the photo to go to my Vlogmas playlist on my YouTube channel

Tuesday, 1 December 2020

December's Monthly Make - Decoupage

Decoupage is a great little hobby. There are so many things you can decorate - I've done a draw set, trinket boxes, wooden spoons, boxes, photo frames, hanging decorations and more. There is also such a wide variety of different papers out there for whatever project you're doing.

My go-to place for decoupage supplies is The Arty Crafty Place they have a wide selection of papers, craft blanks and kits and the prices are very good and as a bonus you're supporting a small business.

Below is a video tutorial on how to decoupage for December's Monthly Make.