Good care matters - my experiences of receiving care

I've had support from carers for several years now and over that time the care that I've received has been varied from wonderful right down to horrendous experiences of care so I've come to realise that good care matters.

Last week my PA was on leave and my Dad and stepmum were away for a few days and I had to resort to using a care agency again to pop in, check I'm okay and to help me out with tasks including getting washed and dressed, taking my medication and preparing meals and drinks.

I was quite anxious to say the least about having a care agency as the last care agency I had when I first got my care package was awful. Half the time I wondered why many of the carers where woking in the job and I never received the amount of time I was allocated and I was often rushed, essential tasks missed like not being given my medication or having a drink. Carers were always consistency late too, especially at bedtime as bedtime is when I'm at my worst. I also need go to bed fairly early so I can get as much sleep as possible to allow my body to function during the day. All-in-all it was making me ill and I was miserable and though I needed the care I couldn't take putting up with this "care" any longer. I was then approved to have my care provided through direct payments which allowed my previously privately employed PA to come back and continue to work as my PA. Currently I'm trying to get additional PA's to my care team as I need care 7 days a week and also to have different PA's to cover for each other for when one is ill or on holiday.

Anyway last week for a few days I had a different care agency. I couldn't have faulted the care I received. I felt that my care needs and wishes where fully met and I was treated with respect and individuality as a young adult who just so happened to need a little help to be able to live their life. I was allowed to choose how I spent my care such as having a bath over a shower, how I like to have my hair washed and my other routines that I like when getting washed and dressed or little things like how much cumber I had in my sandwich. Little things like this when you need a hand with things matters and it makes me feel empowered especially because I need help with things that most people my age can do on their own. For example with my bath I can't bathe on my own but being able to chose what products I use and the order of at one point I'm wanting my hair washing, or when I wash my face or when my body is washed gives me as much control with support and enablement.

My illnesses don't yet have a cure and at 28 it can be difficult to need help to manage different aspects of my life. However good care helps me feel just that little bit more in control of a life I have little control over. Good care make me feel better an it improves my quality of life just that little bit better too both physically, socially and emotionally.

Receiving good care has made me realise what an amazing job care work can be. For someone needing care though it can be hard unfortunately to find good care at times. Thankfully most of my experience of receiving care has been good but like I mentioned I've had my fair share of bad experiences. Not just with community care but when I've been in hospital too and I've heard from home care workers their own experiences of seeing poor care from other carers. Often I've found it depends upon the care agency. The agency I had where I had an awful experiences there where some good carers but on the whole most of the "carers" to me seemed to be working in the wrong industry.

I've always felt and said that carers need greater recognition for what they do as well as to be paid more than just the national minimum wage to reflect the big difference they make to many disabled and chronically ill people's lives. I don't get how someone working in a supermarket can earn more than a carer or a personal assistant. Personally the latter is a much more worthwhile job.

I want to raise more awareness of the role carers play. To help with this I plan to vlog some of what my PA supports me with to give people an insight into the role and the variety in what the job entails. Such as today (Monday 21st) my PA has made my breakfast, supported me to wash and dress, taken me to a nurse appointment for some pre surgery tests. We then went for a drive-thru coffee and came back to get some lunch. How's that for variety! I wish I'd filmed today but hopefully when I have another day like today I can film it but at the moment I've not been well enough to be able to do the editing for YouTube videos so I've been using some videos I made a while back and I'm feeling wiped out from leaving the house.

'Dear Body' by Hannah Hodgson - Poetry review

Rating: ★★★★★ out of 5!

‘Dear Body' is a poetry pamphlet written by Hannah Hodgson. It was Hannah herself who got me interested in poetry through her YouTube channel where she shares videos of book and poetry reviews as well as sharing her own story of living with a life limiting illness and being a palliative care patient and hospice user.

Hannah's YouTube channel is linked here.

I've started to read other poetry but 'Dear Body' was the first piece of poetry that I actually understood and I liked the the different styles in which Hannah had written her poems to exaggerate the topic of the poem, such as the poem 'Processing' where there where very spaces in-between each word to emphasis the difficulty in processing thoughts due to poor concentration and focus.

As well as 'Dear Body' containing poetry I could understand and grasp it was also a collection of poems I could relate to on a very personal level so the poetry collection was even more emotive. It help creatively speak out my own thoughts, feelings and experiences of living with challenging complex health problems. Of how disability is visually left out because it is not a picture of beauty, the marks and scars left on ones own body, the frustrations of living in a body that is broken and a mind that struggles to function, the invisibility of our symptoms and so much more.

Hannah also guest blogged for me a while back and in her post she shared one of her poems 'Invisible'. The post by Hannah which was shared for World Poetry Day can be found here.

If you're interested in poetry or are new to poetry, or to those who are chronically ill or disabled and want to read something relatable then I would defiantly say that 'Dear Body' is a good poetry pamphlet to turn to.

You can purchase 'Dear Body' from Wayleave Press for £5 - link here.

Dealing with boredom when I'm having a bad day

The reality of severe M.E

I have severe M.E; it's a neuro-immune condition that has many different symptoms. M.E affects about 250,000 people in the UK of all ages and around 1 in 4 people will be severely or very severely affected.

I have variable good and bad days. On my bad days it can be a real struggle; my pain levels increase and I'm much more sensitive to light and sound. My mobility is also even more reduced also side worsened orthostatic intolerance and autonomic issues mean that I have to spend most of my day laid down. My cognitive function and brain fog is also more of a challenge. All these things are present most days but they're more pronounced on my bad days.

The things I can manage to do on a good or even average day is reduced so what I do to entertain myself is more challenging so I have to find ways to avoid boredom whilst managing my different symptoms and trying to also distract myself from how I'm feeling not just physically but emotionally too.

One of the main ways that helps me deal with my boredom on my bad days as I lay in a dimmed room is listening to audiobooks and podcasts on a really low volume and I often put in my noise cancelling earplugs to block out the painful background noise and then put on my noise cancelling headphones or my headband earphones so I can just have the low volume of my book or podcast playing to me. I also like options from the book I'm listening to and then the wide variety of different podcasts as I can struggle to focus on one thing for too long sometimes. Especially with podcasts there's lots of different one to choose from in terms on genre and topics whether it be a series or something like a documentary or a chatty style podcast and with these each episode has a different focus. This helps as generally podcast episodes aren't too long so that helps me with my concentration difficulties. 

Usually I can tolerate listening to books and podcasts but if I can't because for example my noise sensitivity is too much or I can't concentrate or I just want something different to do I use my imagination. I play games in my head especially Carcassonne, a building strategy game. We have the actual game which I love playing when I'm able to so it's fun to play it in my head and work on my strategy for when I next play it with other people. Tetris is another game I play in my head. Something else I do with my imagination is to plan and build a house and design the architecture and then the different rooms and then put together the interior design.

I also enjoy mindfulness meditations which I do daily during my rest periods and again I like the variety of the different mindfulness meditations that are out there from visualisation meditations to breathing exercises.

The last thing I do in my mind is plan out future blog posts and videos for my YouTube channel.

Super easy scrap paper handmade card with video tutorial

Card example

This is such an easy card to make and can be adapted for different occasions as well as the different craft supplies you own plus putting your own twist on style of the card.

Difficulty rating: ★ ☆ ☆ - Total beginner

What you will need...

• Blank card and envelope (any size)
• Co-ordinating patterned scrap paper (or card) - perfect if you're coming to the end of a paper pad (your paper needs to be longer than the width of your blank card)
• Sentiment - this could be a stamp, sticker, die cut, hand lettered etc
• Either a paper trimmer or a ruler and pencil
• Scissors
• Glue - liquid craft glue or just a normal glue stick
• Border sticker or alternatively you could use ribbon, washi tape, a very small strip of plain or shiny or glitter card or something similar

How to make the card...

1. Cut your scrap paper into strips

Cut your scrap paper into 2.5cm (1 inch) strips. You'll need around 5 or 6 strips depending on the size of your card and the sentiment at the top.

If you're using a small blank card you may want to cut thinner strips or vice versa with a larger blank card you may want to cut slightly wider strips, say 3cm unless you want a wider variety of patterned paper strips.

2. Place your sentiment at the top of the card

You don't have to place your sentiment first but I find it helps me to work out the placement of my paper strips and also the border that I'm going to add between the top paper strip and the sentiment.

3. Work out what order you want to place your paper strips

Before gluing down your paper strips play around and work out what order you would like to place down your paper strips. 

The first strip of paper is placed along the bottom of the card and the rest of the strips will be placed at an angle.

Tip: Take a photo so you can recall what order your strips will be placed in

4. Glue down your paper strips

If you're using liquid glue, glue down along the bottom of your card and also up the sides of the blank card front. 

On the first strip of card place a line of glue along the top and lay it along the bottom of the card.

With the other paper strips glue a line along the top and bottom.

5. Add your finishing touches

Along the top of you last strip of card place a border to finish off. This could be a border sticker either one with a pattern or a plain or glitter border sticker. Alternatively you could use ribbon, thin washi tape or a very thin strip of metallic or glitter card as a few ideas.

If there is room you could also add an embellishment such as a name, a sticker or like I used a 3D butterfly card topper. 

Ways you can adapt this card...

Some cards I have made as shown in the video tutorial below, other times I have used a sticker or die cut sentiment or used alphabet stickers or stamps to personalise the card.

I've also used different sized paper strips depending on the size of the blank card I'm using.

Another thing I have done is to completely cover the blank card front in paper strips and then mounted on top a sentiment which I had stamped onto white card mounted onto coloured card that complimented the colour of the paper strips and then stuck it on the card using 3D adhesive foam. 

The many possible ways you can finish or adapt this card are endless!

Video tutorial

Kintsugi 金継ぎ - Acceptance of physical & mental brokenness

I've been listening to a mindfulness meditation series on Headspace about self-compassion. In each meditation the narrator gets you to repeat to yourself the following affirmations:

"May I accept who I am", "May I love myself as I am" and "May be at ease with who I am"

At first I found this hard to really take in. I don't love, accept or feel at ease with myself. Part of this was about my disabilities as it's taken me a long time to accept my chronic health problems into my life. My disabilities have made it hard to love myself as I am now and equally to be at ease with myself and my disabilities and all that comes along with having disabilities and chronic health problems.

It can be hard to love a broken body and mind; especially one that can't be fixed. So in the absence of being able to fix my brokenness I must learn to love myself as I am and accept my brokenness and also be at ease living inside a broken body and mind.

Kintsugi, 金継ぎ, is the Japanese art of putting broken pottery pieces back together with gold — built on the idea that in embracing flaws and imperfections, you can create an even stronger, more beautiful piece of art.

The Kintsugi bowl I made

Something I did a while back with my therapist was to make a Kintsugi bowl. It was a kit my therapist had bought for me, which was such a lovely3 thing for her to do for me and was so kind of her. 

The small bowl was whole. I then had to break the bowl, which I tried to do artfully, ensuring that the bowl was broken in a particular way. With my own physical and mental brokenness there was no artful way in which I have become broken.

Once I felt happy with my artfully broken bowl I set out to fix it, but to fix it in a way that would make the bowl more beautiful for having been broken. I mixed up a combination of glue and gold powder to make a golden glue to piece back together my now broken bowl. When I reflected with my therapist about how I glued to bowl back together my therapist pointed out to me about how I glued the bowl back together (therapists have to analyse everything (!) but it can be helpful at times and even I'm analysing in this post!). I didn't rush putting my broken bowl back together I carefully applied the glue, like how I care for my own broken pieces. I applied the amount of glue that I wanted. Remembering back to this therapy session I remember how I wanted enough glue so that it was visible and showed through the cracks of the differs ceramic shards. It was a carefully chosen process. With my own brokenness some of my cracks are invisible; my pain and exhaustion and struggles with mental illness cannot be seen but at the same time I also have scars on my body that are visible but I choose to hide.

The whole process of braking the bowl and then putting it back together made me think of my own body and mind's brokenness. I feel like throughout my whole life I've been broken in one way or another and smashed apart as I've gone through my life both by other people around me but also due to physical and mental illness.

In therapy over the years I've often stated how I feel that I'm broken into a million pieces and 'too broken to be fixed'. Unlike how I artfully broke the bowl I've never had any control over how my mind and body has broken and because of this it's been difficult to piece myself back together. Therapy I would say is the thing that's held my brokenness the most over the years. Sure inpatient and day patient treatment (both psychiatric units and medical admissions) has kept me safe and in all honesty alive, but even my times in hospital have added to my brokenness from so of the things I experienced as a patient. Then there is the medication I take both for my physical symptoms and also my two psychiatric medications. Medication just enables me to manage my physical and mental health symptoms to allow me to just get through the day. 

Therapy isn't for everyone but for me over the years therapy (most of the time) has been what has held me together the most to stop my broken pieces being blown away in the wind.

Going back to the kintsugi bowl I did with my therapist a few months ago massively helped me. It was such a simple thing that me and my therapist did together but it really helped me to accept my physical and mental brokenness but how in time I can piece my life back together. I will never be whole and unbroken again; I will always have to deal with being physically and mentally unwell. However out my brokenness and with time my broken pieces will come together and what I've learnt over that time in life and in therapy I can turn my brokenness into some better and create something positive. I can use my brokenness for example to help others, like I hope I do through my blog and what I share over on my YouTube channel and also through things like voluntary work and the support I give to my friends and others around me and hopefully in the future when/if I'm able to work. I can use my lived experience to my advantage and turn negatives into positives which I feel I already have done.

As well as helping others inwardly I can turn my brokenness into something beautiful. There is no cure for my physical and mental illnesses but as I was putting my kintsugi bowl together I realised that in my own self I can develop a better attitude and learn to accept my brokenness and learn to love myself including the broken parts and also to live and be a ease with my brokenness. By doing this I can start to feel whole, glued back together with gold.

I keep my kintsugi bowl next to my bed and put random bits on bobs in it but every time I see the bowl it reminds me that in time my body and mind can become like that bowl, broken but whole held together with something beautiful.

Book review: 'Me Before You' by Jojo Moyes *Spoiler alert*

Rating: ★ ★ ★ ☆ ☆ 

The plot of the story is basically Lou, a young woman in her 20's who is looking for a job after the café she worked at closed down. After many failed attempts at finding new employment Lou takes on a job caring for Will who became a quadriplegic after being hit by a motorcycle. Following his injury Will struggles to adapt to becoming a quadriplegic.

It's a romance novel, a genre I'd never read before. If I hadn't of heard Jojo Moyes sharing that it was a romance novel in an interview with her at the end of the audiobook I wouldn't have instantly put it down to be a romance novel. Saying that though there was an element of romance as Lou and Will over time grew feelings for each other as the story unfolded.

I think the author got it sort-of accurate on Lou's perspective as she get's used to caring for someone with a disability as someone new to this type of work. For example how at first Lou and Will struggle to connect with each other and Lou getting used to taking on a care work role such as managing Will's medications and the complexities of his health and how she feels unsure of what she is doing. Then on the flip side Will getting used to having Lou as his carer. I also feel that the author did her research on the affects of spinal cord injuries and also their care needs such as at one point in the book Will develops a fever and due to his injury he is unable to control his body temperature and required medical intervention.

I think the author got it accurate sort-of such as how at first getting used to having a new carer and also for Will how it feels for him needing someone to do so much for him and the loss felt when you become disabled which I could relate to. As well as this the emotional response people have towards their acquired disability. I think it was positive how Lou tried to show Will that there’s a life you can still live when you have a disability.

Despite Lou's best efforts to help Will see that he can have a life worth living despite his health problems Will remains deeply unhappy and wanted to end his life in Switzerland with the organisation Dignitas. I felt it was very brave of the author to bring into the story assisted dying and the mix of feelings and reactions from people Will, his family, Lou her sister and the quadriplegic message board. 

I liked how though most of the book was written from Lou's perspective that parts of the book were in the view of other characters such as Will's parents and Lou's sister however I would have like a chapter written from Will's perspective.

All-in-all it was a good book and I would like to see the film version and also read the book sequel at some point but I don't feel in a rush to want to read it.

Why the plastic straw ban is still a big deal

It's been a long time since the straw ban came into place but this issue still affects me so much.

Plastic straws are an essential aid for me; without them I'd struggle to drink and the vast majority of straw alternatives are not suitable: injury risk, allergies, not positionable, too expense, hygiene etc - see the chart below. I have floppy weak wrists so I can's tip a cup towards me; I also have to use lidded cups because of my involuntary movements. When I'm in hospital I hate being given the beaker cups with a spout lid.

Everyone I know who has a need for plastic straws always re-uses them; they are never 'single use'. When the ban came in I stocked up on straws so I have plenty to keep me going for quite a long time. I do have some silicon straws that can be spilt down and reconnected which (a) makes they great to clean but also (b) these are hypoallergenic silicone but the issue with these straws are that I can't position them to bend. I have to spend a lot of time laid down so I've perfected my ability to drink in this position and bendy plastic straws are the only option in this situation.

One thing I don't get is that if I say ordered a frappachino it comes in a plastic cup with a plastic lid, or if I buy a Diet Coke it's in a plastic bottle (which I still need a straw for) or if I order coffee and have a fruit pot the fruit pot comes in a plastic pot and I may also be given a plastic fork and if my drink is to-go it has a plastic lid. Yet whenever I ask for a straw it's paper or at the café at my hospital they provide hard biodegradable plastic straws that (a) melt in hot liquids, (b) if I jerk I jab the roof of my mouth and both the paper and plastic straw aren't bendable. I do try to carry around some straws but sometimes I forget to bring some with me or I don't plan to get a drink. Also where is the recycling points for my plastic bottle or fruit pot or paper cup and straw?!

So as you can see the straw ban though old now is still a big deal for me and probably many other disabled people.

Positives of 2021 and plans for 2022

It's so easy to dwell on the challenges of the past year. Thinking about how my M.E has worsened and whether this new state my M.E is in is now my new normal or how my FND has progressed with new symptoms developing and the difficulties I've had at times to access care like the migraine clinic that I've been waiting to see for about 2 years. Then there was the surgery I'm desperate to have an I could have had it but I need to have it in an NHS hospital as I need ITU/HDU on standby due to the complexity of my needs and no one can tell me when my surgery will happen. Then there's the dwelling on how the following year will be and the challenges I will undoubtably have to deal with ahead of me.

Dwelling on the challenges and negatives is so easy so what I've been doing with my therapist is thinking about the positives of this year no matter how small and also what I've achieved this year. This has really helped me to see this year much better; it doesn't take away the challenges but it's made me see things in a different and brighter way.

So, what's been positive in 2021?...

• 
  The first thing is how I've exceeded my goal of getting 100 subscribers to my YouTube channel. At the time of typing this it's not the end of the year yet and today checking on my channel I have 128 subscribers!
  
• I've also exceeded to number of books I planed to listen to/read on my Good Reads reading challenge.
• I've supported and participated in different opportunities. I've written articles for both the M.E Association and Action for M.E and also supported and been part of some of the campaigns they've run this year. I'm now an M.E Champion Blogger for the M.E Association. I also have become and ambassador for the Chronic Warrior Collective and joined their Extra Card Crew and supported their work.
• I feel so much gratitude towards my friends and pen pals for all the messages and mail I've received this year.
• This year I finally got a care package after years of trying and I now feel supported by our local adult social care service. I have a very good social worker, and a fab PA. Plus also in my care I have some good doctors and my link worker from the Social Prescribing team is great. Also just recently I've been assigned to a lovely advanced nurse practitioner from the 'Chronic and Complex' (which is how they alway see me when I'm in hospital) team who's supporting me with my care. I feel that in terms of my health and social care the past few months my care and support has really come together finally and getting this care I feel more positive about 2022.

Projects and things I want to do in 2022...

• I what to buy things from smaller or independent shops as much as possible more this year
• I want to commit to my photo journal 
• Also I want to stick with my 1 Second Every Day project and come up with some creative video clips (as my life isn't that interesting which I think is why I stopped last year)
• I want to finish my BSL online course
• I would love to learn how to braid my hair
• I want to continue growing my blog and YouTube channel
• And finally hopefully I'll have my surgery soon and some extra PA's too!

FOMO - Feeling of Missing Out

I don't use the term 'Fear Of Missing Out' because there're isn't any fear that I may miss out; I know that I'm missing out hence the feeling of missing out.

Having chronic health problems, especially having severe M.E I often feel like I'm missing out. This could be missing out from not having being able to graduate from University, or feeling like I'm missing out on what I see people I know are up to from what they share on Instagram or missing out on family occasions or that I missing out on the life that I should be living if I hadn't have become unwell. I feel like I'm missing out on so many things: education, employment, socialising with friends, family get togethers, holidays, going places and so much more.

I've never gotten over the Feeling Of Missing Out and it makes me feeling like my ill health is winning over on me and that it's taken so much away from me. Rather than feeling angry like some people may feel for me I feel more a sense of deep seated sadness for the life I should be living if I hadn't of gotten ill.

During the Christmas holidays especially for myself and many others it feels a time of feeling like we've missed out. There ar times when I've had to miss out on events; some of which I would have loved to be part of but I know it wouldn't have been possible for me to join and it would have tipped my fine balancing of energy levels and other symptoms. I had to prioritise so carefully what I could and couldn't do and how much I could do. 

That feeling of missing out makes me feel at times invisible as I'm not there, instead I'm alone in my room. Coincidentally the international campaign on World M.E Awareness Day is called the 'Millions Missing' - the millions of people world wide missing from employment, education, society etc due to their M.E, especially those with severe and very severe M.E.

I don't think I'll ever get over the 'Feeling Of Missing Out'. I always wish I could enjoy things and equally not feel the payback and exacerbation of symptoms when I do join in with something. However I feel like I've come to accept those feelings of missing out and times and events that I do want to join in with, even briefly, I've found ways to do so. I plan lots of rest beforehand, I ensure that I manage my energy whilst joining in and listen to my body when it starts to tell me that it's had enough or needs a break and I ensure that there plenty of time to recover after.

I've also come in a way to accept my limitations and that feeling of missing out. I know that I can't do everything so instead of dwelling on what I can't do and what I'm missing out on I look at what I can do. This has taken me some time to do and there are times still when I do feel sad about certain things I'm missing out on. Life with chronic illnesses isn't a linear; there are times when I feel okay and times when I don't feel okay including that feeling of missing out. Sometimes seeing a post on Instagram or something on YouTube or hearing what a friend has been up though I'm happy for my friends inside I wish I had the ability to do things and then that makes me feel like I'm missing out on things I'd love to be able to do. But this is where acceptance comes in and also focussing and feeling gratitude for what I am able to do within my restrictions and the feeling of what I can do rather than the feeling of what I can't do and what I'm missing out of.

Christmas with a chronic illness plus some tips

Christmas is a lovely time of year. I love spending more time with my Dad who is off work as he's a teacher and I enjoy seeing my family. I love the kindness of my friends sending me cards and gifts and I enjoy making cards and gifts and sending them out in return.

However, this time of year can be difficult. I can't speak for all chronic illnesses only mine and how they affect me. I find Christmas affects different aspects of my illnesses. My limited energy means everything takes a lot longer to do and as I type this I still have a load of wrapping to do. Making, writing and sending out Christmas cards and gifts took me at least 6 weeks to do - I don't normally do Christmas cards but it was something I wanted to make an effort doing this year. I also have to plan a lot of things, things I want/need to do and how I will do them such as breaking up the task, ensuring I follow my daily plan and have regular rest periods, have restful days before Christmas Day to enjoy the day and then plan Christmas Day itself and then ensure I can rest and recover after Christmas Day so that I'm able to visit family which I really want to do as I haven't seen my cousins in quite a long time. 

There are also events that I have to decide to sit out of as it will be too much for me. I find my hypersensitivity is affected so having family round downstairs (which I'm sitting out of and laying in bed resting instead) and the noise from downstairs is too much so I put in my noise cancelling ear plugs and also my noise cancelling headphones. As well flashing fairy lights affect my hypersensitivity to light. I also find the cold makes my pain and muscle spasms worse.

Despite all this I set myself to focus on the enjoyment of Christmas and when you have a chronic illness or disability you do just learn to live with and adapt. Christmas just poses extra challenges compared to rest of the year.

Some of my tips for managing the holidays with a chronic illness or disability

(As I said above, I can't speak for all chronic illnesses but hopefully you may be able to relate to some of what I've written and also some of what I'm going to write about below.)

• Ensure you have enough medication to keep you going!
• Plan, plan, plan! List all you want to do, from doing some baking through to Christmas Day events
• Use your activity management skills; don't do more than you're able to and listen to your body. If it's telling you that it's tired, in pain or flaring up etc stop and take a break and rest.
• Pace yourself. Break tasks down such as Christmas card writing or wrapping gifts.
• Though you can feel like your missing out your body isn't Superman and you may need to sit out of some things so you are able to enjoy the things you do take part in.

Low Level Activities

When you have a limited supply of energy it can be difficult at times because you want something to do to occupy yourself but you may lack physical or cognitive energy to do certain activities. I find myself in tis situation a lot as well as building low level activities into my daily plan so I'm doing more restful low level activities alongside actives that take up more of my energy.

So here are some low level activities I find help to fill my day.

Audiobooks

I find reading a little more challenging as it requires more concentration so audiobooks have opened up a whole new world to me and made me fall in love with books again. There is a lot of audiobooks out there in a wide range of genres and I find it really enjoyable to lay in bed listening to a book.

If you struggle to access books because of you're disability you may be consider to have a 'print disability' alongside those who are blind and visually impaired. This may give you access to the RNIB Library and Calibre audiobook library though an app called Easy Reader. This is how I get my audiobooks and it's great that I can access audiobooks for free. Alternatively there are lots of different audiobook subscription services out there now with more people wanting to access audiobooks. 

Reading

If books are accessible to you this is another low level activity and depending on your ability you could just put 10 minutes aside to read. I find trying to get a variety of different activities in my day helps me as my mind and body aren't overdoing in on one type of activity. But if you love books you can spend as much time as you wish reading.

Some areas may offer a home library service and volunteers can find the sort of books you like and bring them to your home for you if you are not able to visit the library yourself and this can help bring down the cost of buying books as well as finding room for your books.

Podcasts

Podcasts I quite enjoy listening to as I find them so informative and I like the wide variety of podcasts that are out there. There is such a wide variety of podcasts out there on a wide verity of genres, for documentaries, educational, mini fiction series, current affairs and chatty style podcasts and everything in between! There really is a podcast for everyone.

I get my podcasts from BBC Sounds and Apple Podcasts and currently I'm subscribed to Audible so there's podcasts on there too.

Colouring

Colouring is a good low key energy as you can break the activity down and just spend small amounts of time and finish the image bit-by-it. There's also such a wide range of colouring books out there; some with more complex images than others. You can also get colour-in stickers or postcards.

Activity books

There's a wide range of activity books out there from word search books, criss cross, sudoko to more creative activity books like sticker-by-numbers. Like colouring you can break the activity down and just do one word search puzzle or part of a sticker-by-numbers image. 

Jigsaw puzzles

If you're able to jigsaw puzzles are a great low level activity and like with some of the other activities mentioned above you can slowly work on jigsaw puzzles until it is completed. You can also get a range of difficulties from 100 piece jigsaw puzzle to ones with 1,000 pieces.

I'd recommend to start small and to work your way up. If you find you enjoy jigsaw puzzles it might be worth getting a puzzle board so you can store the jigsaw puzzle you're in the middle of working on.

Pinterest

I would personally consider Pinterest a low level activity. You can build boards on different topics based on your interests. One activity I'd defiantly recommend doing on Pinterest is building your dream home with no limitations or restrictions. As a suggestion you can create your 'Dream Home' board and have a section for each room of your dream home and you can spend ages designing all the things you'd love to have.

Book review: 'The Secret Midwife'

Rating: ★★★★☆

I thoroughly loved this book and it was something different to my usual genre of book and I'm intrigued to listen to more memoir/confessional books.

The book is written by a midwife who remained anonymous and she shared in her book in a chronological fashion. At 17 she didn't know where to take her life and then went on a midwifery taster course and loved it and she knew then that that was her vocation. At 17 she started her 3 year midwifery diploma. She took the reader through her training as a midwife until she qualified and proudly put on her blue dress for her first shift as a qualified midwife. 

The book followed the highs and lows of her career and she went into such detail including the medical aspects and I learnt so much about the role midwives play and all the complications that can happen. As well as that she also shared her person life; how she broke off a long term relationship and then found her husband and their relationship and life together, her miscarriage of her first baby and then the birth of her daughter. 

In the book she also shared the changes of her role as an NHS worker as the years passed by. The way management changed, new protocols and changes to NICE guidelines and work practices. As well as this she also spoke of how it was like to work for the NHS and the strain on resources, lack of support in certain areas such as giving evidence in court and chronic staff shortages. In the book the author shared how this ultimately lead her to having a mental breakdown and having time off work due to anxiety and depression.

Each book touched on different topics and themes of the job such as her midwifery training, baby loss, mental health in motherhood, babies born in corridors and in toilets, Dad's delivering their baby as there was no time to get to the hospital, birthing complications, surrogate women, different cultures and how this affects the delivery of a baby among many other things.

It was a totally different book to the ones I've been listening to for quite a while now and I throughly loved this book and I've already sought out similar books. I learnt a lot about the role a midwife, what they do and so much more. That whole side of healthcare I'd never given much thought to and I now admire the complex role midwives play within the NHS. 

As I listened to the book I followed the highs and lows of the different men and women the author featured in the book. There where funny moments and more somber elements. It's a book I would defiantly recommend.