Wednesday, 31 December 2025

Looking back over 2025 and into 2026

So what were my goals and intentions for 2025

  • Set more time aside for self-care
Done
  • Rest more and try to create a schedule for my day
Not quite always done
  • Engage more in my faith - attend more Meetings for Worship and join in with groups run by Friends at the Meeting House
Sort of doing more now these past few months. I join in on zoom fortnightly.
  • Spend less and use up what I have especially when it comes to craft and stationary supplies
Done
  • Read up the books on my shelf and don’t buy new books unless they’re already part of a series I’m reading that’s on my shelf 
Not quite done as I got my Kindle 
  • Continue with my 1SE project for 2025
Done
Done
  • Continue to spend less time on social media 
Yep I’d say to that one
  • Do random acts of kindness 

I’d say yes to this too


In 2025 I managed to do:

Me and my best friend set out to declutter, save money and not buying craft things or pen pal supplies. We did this jointly to support each other with these goals throughout 2026.
  • Decluttering most of my bungalow. I’ve donated a lot and thrown out a lot. It’s made me realise that I don’t need so much stuff. I listened to a book on how to declutter and simplify your life and from that I made a detailed floor map to break down really simply the areas that I needed to declutter. This helped with my ME and pacing the task too.
  • I also reduced my craft supplies and donated wha I didn’t need or would use to the hospice for patients there to use in craft groups. I’ve bought very minimal craft supplies this year and I used up what I had; most of what I have bought was to help me use up what I have like aperture cards to use up my iris folding papers.
  • I stuck to buying no pen pal supplies and again I’m using up what I have. 
  • I also tried to spend less this year and have as many ‘spend-free days’ as possible. When I had a ‘spend day’ I’d group together everything I needed to buy so as to have less ‘spend days’.
  • Do some opportunities in my role as a Storyteller for the disability charity Scope. I also volunteer with Cards2Warriors and send mail out to people having a difficult time with their health.
  • Continue another year with my blog. I’ve taken a back seat on social media with my disability accounts; I want my social media to be positive plus I was finding it exhausting making content.
A project I did this year with my best friend was something my old therapist suggested; it was a jar project where we write notes to each other and put them into the jar. We’ve exchanged the jars to open in the new year which can is often a difficult time so it gives us both something positive to do in the new year.


In 2026 I want to:

  • Finish off my decluttering my bungalow and sending off my box to the charity shop so it’s not cluttering up my bedroom.
  • Again, not buy any craft things and continue using up what I have.
  • Carry on using up my pen pal supplies. - I eventually just want to have a stash of pretty note pads to write letters on and make my own envelopes.
  • Try and spend even less and have more spend-free days.
  • Continue my role as a Storyteller for Scope and hopefully there will be some opportunities for me with them next year.
  • Continue brightening peoples day with mail through Cards2Warriors. I also hope to do some artwork and design some cards for The Chronic Warrior Collective which is a connected organisation to C2W.
  • Carry on blogging for my 8th year with as many posts as I’m able to write. I aim to still do disability content and I want to write more about mental health but I also want to try and do more non-disability content as well.
  • Read as many books as I can now I have my kindle!
  • Do 1SE again.
  • Sell or donate the clothes hanging on my wardrobe door.
  • Get to a point where I’m happy and recovered from my anorexia or have learnt to control it rather than it controlling me.
  • Go on as many Batec adventures as possible - I’d love to go to the woods and down the sea front. 

Friday, 19 December 2025

Helplines open over the holidays

 Samaritans

  • Call: 116 123
Open 24/7 every day of the year


Beat, Eating Disorder support 

You don’t have to have a diagnosis to contact the helpline
  • England phone number: 0808 801 0677
  • Scotland phone number: 0808 801 0432
  • Wales phone number: 0808 801 0433
Open: Monday - Friday, 3pm - 8pm

All free phone numbers

Calls can also be accessed in BSL and Welsh


Shout

  • Text ‘Shout’ to 85258 for support 
Open 24/7 every day of the year


The Mix

  • Support groups in the run-up to Christmas, these are for young people under 25


CALM

  • Call: 0800 58 58 58 (free phone) 
Open 5pm - midnight every day 

Release the Pressure

  • Call: 0800 107 0160 (free phone) 
Open 24/7 every day of the year 



ME Connect

From the ME Association 

  • Call: 0808 801 0484 (free phone)

Christmas open hours:

 
Monday – Friday: 10am-6pm 
Thursday: late night until 9pm 
Saturday: 10am-12pm 


EDS UK Advise line

  • Call: 0800 907 8518 (free phone)

Open: Tuesday’s and Friday’s 9am-3pm


If you are in immediate danger or need of urgent medical help call 999 or NHS 111

Saturday, 13 December 2025

How to make your Christmas chronic illness friendly

Christmas can be really hard when you have a chronic illness and there are lots of elements to it that make it a challenge. Getting cards written and sent out, gifts bought and wrapped, homes to decorate. Plus there’s events to go to that you need to have the energy for plus the pre-energy to get ready to go out: getting dress up, doing your hair and makeup and nail. It’s exhausting even before you get there! Then there’s the post event energy comedown crash giving you time to recover before the next event. On top of that you have your health to continue to deal with as well! It can often feel overwhelming and just exhausting to even think about.

As well because of your health you have to decline invites to events. This brings FOMO; not the ‘Fear’ but the ‘Feeling Of Missing Out’ because you actually are missing out and that can be really hard. I find it hard because I miss out on seeing family members I rarely see and I’d like to be able to see the but I know realistically my body can’t handle the event. The only event I do over Christmas and New Year is Christmas Day with close family. I just go to my Dad’s for a couple of hours to have Christmas Dinner and to exchange and open gifts from each other.

Christmas isn’t just hard on our physical health it can be difficult emotionally too. Like I said above missing out on events or feeling down because you’re in pain or an increase in anxiety or stress levels because it’s a change in your routine which can be hard for those with autism or difficult feelings around food if you have say an eating disorder or because this is your first Christmas in which you receive artificial nutrition, or you’ve had a deterioration in your health since last Christmas, you struggle with loneliness or a whole host of other things that can make Christmas a difficult time.


Ideas for a more chronic illness friendly Christmas:

  1. Get Christmas themed bedding. This will bring some festivity to your bedroom especially if you spend a lot of time in bed.
  2. If you spend a lot of time in bed think about decorating your bedroom for Christmas. This is something I’ve been thinking about how I can do this, like where can I put a mini tree that I can decorate (I love Sass & Belle’s tree decorations!) It’s something I need to figure out but something I’d like to do as I don’t often get to spend a great deal of time in my front room where my main tree is.
  3. Buy Christmas pyjamas - I got some lovely ones from Chelsea Peers.
  4. Christmas can be difficult emotionally for different reasons so so maybe plan some self-care activities over the holidays. If you find Christmas Day especially difficult plan some things for Christmas Eve evening: make a hot chocolate, watch your favourite film or TV show series and do your nails and put on a face mask.
  5. Remember that there are helplines that are open even at Christmas. - I’ll do a blog post on what helplines are open over the holidays.
  6. Remember to take time out to rest just as you would any time of the year.
  7. Instead of wrapping things you can put your gifts into gift bags instead to save you time and energy.
  8. You can get wrapping gadgets like paper roll slicers and on hand sellotape dispensers. I have both of these gadgets and they really do make wrapping much easier.
  9. Start Christmas shopping early. I even have a basket of gifts ready to give at any time. This saves me time and money as it means less Christmas shopping. Plus remember gifts are more about the thought than how much you spend on someone.
  10. I find making lists really helps both my anxiety and it helps me make a pacing plan. On my phone I made two lists one for cards another for gifts all multi colour coded and looked like organised chaos. I now have another tick box list that’s much more simplistic in my bullet journal with all the final tasks I need to do so I can now pace myself with that list between now and Christmas and it eases my anxiety seeing what I’ve achieved and what I still need to do.
  11. You don’t have to look red carpet ready when going to events; it’s more about being there than having fancy nails, glamorous makeup and fabulous hair. What matters most is you being there.
  12. Treat yourself to a really nice advent calendar. I’ve found this year getting myself an extra special advent calendar gives me something to look forward to each day and I’m loving a lot of the things I’m getting. I got myself a Birchbox advent calendar with luxury brand products in it totalling £460! The products make my skincare routine just that little bit more special and it’s enjoyable using new products. This also helps me engage in more self-care over the holidays too.
  13. Do Christmas crafts that you find you can do to get into the festive spirit. There are a lot of  low-level activities¹ and activities you can do in bed² for example I got a reindeer punch needle kit that I know I in bed and I can do on/off for short periods at a time.
    1. * these are activities that I’ve classed as low-level, for some people they may be more medium-level 
    2. ** these are activities that I’ve found I’m able to do in bed
  14. Listen to Christmas themed audiobooks. My annual go-to it ‘Twas the night shift before Christmas’ by Adam Kay which I always love listening to and it is so funny.
  15. Don’t feel bad for asking your care agency to come out to you over the holidays. You deserve the care just as much as anyone else.
  16. Plan days of rest, for example for myself Christmas Eve, Boxing Day and the days after that will all be rest days for me to enable me to go to my Dad’s to spend time with family on Christmas Day in the afternoon. 
  17. You could decorate your mobility aids for Christmas like putting lights on your wheelchair wheels or tinsel around your guide cane. 
  18. If you have a medical device like a catheter, feeding tube, port, ileostomy bag etc. you can get Christmas themed tubie pads, valve, line and bag covers as well as tubie face tape.

Monday, 1 December 2025

Last minute chronic illness/disability gift ideas

It’s that time of year again and if you’re stuck for last minute gift ideas for someone with a chronic illness or disability here are a few suggestions:


Pippa Stacey’s two books

Both from Waterstones - both books are written to go with each other. They’re both also available on Kindle and the first book is also available as an audiobook but personally you’re best off getting the physical copies as Pippa has designed activities to do in the books, especially the second book which is very much like a journal.

  • A fancy Blue Badge wallet - you can get nice ones from AmazonBlue Badge Co and Etsy
  • Travel card holder for a disabled bus pass or rail card - check out Etsy and Amazon

  • Attachment system, cup holder, bag, thermal tumbler 
  • Wheelchair cosies, organisers, spokegards



 

Experiences

Often people with disabilities find it hard to get out. You could gift them an experience like a day out, afternoon tea somewhere accessible or meets their dietary restrictions, or a gift voucher for a spa that is accessible.

Check out access guides like Euan’s Guide or AccessAble to find accessible places.

Alternatively you can gift experiences at home like look on Facebook for mobile beauticians, nail artists or if the person is into dance you could gift a virtual dance session with a gift card for Kate Stanforth’s Academy of Dance who specialise in disability dance.


(*prices correct at time of publishing)