Saturday 8 August 2020

Severe M.E Day - Life with Severe M.E

Today is Severe M.E Awareness Day. It's a day to remember those struggling to live with this illness and to remember those that have lost their life to this illness.

I could tell you my M.E journey but I've already kind of done that so I thought I'd do something a little different. I'm no creative writer but hopefully this will share with you a little about life with M.E

Myalgic Encephalopathy...

My life has been turned upside down
You can't see it, but I feel it
Anger, upset, frustration all the emotions I have felt and more
Little things in life become the big things
Grief for the life I once had
I am defined by my illness but it is not the sum total of who I am
Cure, something we all hope for but more funding is needed

Exhausted of being exhausted
Never knowing what symptom will hit me next
Closed off from the outside world
Endless plans cancelled 
Pacing your way through the day to minimise the crash
Hope is the thing I cling to; for better days to come
Although my life is different to the one I had planned I rebuilding a new one
Loneliness, looking at the same few walls most days
Occasions remind me of the lost years and more lost years to come
Pain, I can't remember what it's like to be pain free
All the days and nights blur into one
The clock ticks by and I just take each day step-by-step
How I hate being ill yet I am grateful for what M.E has taught me
Years go by with my life on pause, hopefully one day it will play again

A teal sofa with a caucasian woman with short brown hair sleeping with a grey blanket over her blue to green gradient square with 'M.E: Severe M.E Day August 8th' and below the square it reads the member tham, remember ME