Tuesday 23 February 2021

A little life update

So I don't generally do life updates anymore on my blog - something I used to publish a weekly but I've moved on from doing that. However I thought as there's been a bit going on and it's been a while since I did a little life update that I'd do one.

Life is still a struggle and my health especially my M.E continues to be a challenge. Most days I spend a lot of time in/on my bed as this is where I am the most comfortable and my symptoms seem to be more manageable. When I can I try to spend some time in other rooms for short periods of time such as when I play games with my family or when I did my Moomin jigsaw puzzle (see the post on 'What I've been loving lately'. I also try to sit on my bedroom floor too to do crafting and letter writing which allows me to spread out a bit more. What I learnt in hospital about activity management has helped a lot despite the fact that my health is still a challenge like for example putting a timer on when I start an activity so I don't spend too long dong it to the point of exhaustion and my planned rest periods and to know when I may need additional rest periods or rest days.

Positive things that have happened recently 🌈

I now have finally found a PA who has accepted the job; at present we're just getting the paperwork in order. In her interview she seemed lovely and really friendly and professional and I got a good vibe so fingers crossed. When she starts it's going to be such as help not just practically but it will help me emotionally knowing that I'll be able to wash regularly and have clean hair and be able to do enjoyable things like going out to post letters in the fresh air, or do some baking and eventually go to some social groups and the hairdressers etc.

I've had my first COVID vaccine!

Also I spoke with the orthopaedic surgeon a while back now and I'm on the list for the surgery on my toes under general anaesthetic as due to my hypermobility disorder I'm unable to have local anaesthetic. I've had my pre-admission appointment which I had last week. Now all there is to do is wait to speak to the anaesthetist and then wait for the letter with my admission/operation date. Hopefully the wait won't be too long.

Things are going well with the hypermobility pain clinic and it's amazing to be able to speak with someone who is so knowledgeable and understanding of my condition and to offer me support and advice.

I'm enjoying my blog and YouTube channel and it's nice to have found a routine with it and to have gotten to a point where I have regular posting days for both my blog and YouTube channel.

Finally my stepmum has also sold me her old sewing machine and she gave me my first lesson on it today and I made a hair scrunchie. It's far far better than my other extremely basic sewing machine so I hope to get back into sewing when I'm able to do so.