So n Friday I got the news I've been waiting a long time for. I have bed at the neuro-rehab unit in Leeds and I will be admitted on Thursday!
Back when I first net my neurologist in 2017 he wanted me to go there and since then my health has declined. The process of applying or funding was delayed as no one locally knew who was responsible to ask the CCG for funding. Finally when I got my independent advocate she made it clear ro my GP that it was his responsibility and she ensured he did send of the request to the CCG. Initially the request was denied as they wanted more information so with more information and a reappear the funded was granted, but the CCG would only give 6 months then after that time we'd have to reapply. I spoke with my neurologist and MP to try and contact the CCG to extend that 6 months but the unit in Leeds was also aware of the time limit we had too. The funding was going to run out on the 2nd November so I got the bed just in time.
Since Friday I've been feeling quite anxious and I've made a start on packing and there are a lot of emails and phone calls I've made and I've got on my to do list for tomorrow.
It won't be a magic fix for me but it will give me much needed support and hopefully get some management and even some improvement of some of my symptoms. I'm also looking forward to being around staff who understand my illnesses and being with other patients who have similar health struggles.
I will try and keep you updated as much as possible whilst I'm there but obviously I'll be busy with treatment and then resting and recharging in-between.