EDS causes a defect in collagen, the glue that holds your body together. If you can imagine, having defective collagen can affect any and every system in your body negatively.
Everyone with EDS is affected differently - some may live their whole lives without realising they have EDS, others can have life-threatening consequences. Unfortunately, most people, including many doctors, don’t know about EDS, which can lead to judgement. If you know some with EDS, the most important thing you can do is show understanding and compassion. It’s a very difficult thing to live with, and a little kindness goes a long way.
