- Monday 9th July - Felt quite low today but a trip to the hair dressers picked me up a bit. I struggle with washing my hair and I really don't want to cut my hair short so someone suggested to me about going at getting my hair washed at the hairdressers which was a nice pamper. I've booked in for 2 weeks time and in the mean time I have my Dad and carers and when I feel up to it if possible wash it myself to try and reduce the usual greasy hair look that I normally unfortunately have to put up with. When I got home I was exhausted so I just laid on the sofa and half watched/half dosed with the TV on. I did plan on having an early night but now I'm in bed I'm a total insomniac. I don't think my low mood and and anxiety are helping so i may resort to taking some extra promethazine and tomorrow's plans may have to change but I'll see how I am in the morning. Hopefully I can get to sleep soon as poor sleep nights end up with me just going into crash mode which I really would rather avoid.
- Tuesday 10th July - Had a very low day today. Struggling physically and emotionally so just took the day in baby steps. I got some nice mail including some PostCrossing postcards and some charms and certificates from the Bravery Bottles project. As a pick-me-up I ordered some flavoured instant coffee - when I went into hospital Mandy bought me a little selection pack which I really enjoyed so I treated myself to some to drink at home. I bought two jars of flours I liked them a section box of 100 sachets which should keep me going for a while!
- Wednesday 11th July - My social calendar when a bit haywire today. This morning I went out with my carer and we ran a few errands then we took a drive to Bring Garden Centre and I have coffee and a Naomi friendly rhubarb crumble cake. Then in the afternoon two ladies from the Wellbeing Service came to see me. I then got ready for the evening when I went for coffee and to the cinema with a friend. We went to see The First Purge. I wouldn't quite class it as a horror film but it was good and it had a good catch at the end. I was utterly exhausted when I got home but I couldn't get off to sleep. i was in fair bit of pain and it was just one of those nights.
- Thursday 12th July - Woke up more exhausted than I was at bedtime and because last night was out of routine because I was out I forgot to take my night meds *oops* so no wonder I was in such a lot of pain. I took what night meds I could take in the morning should I forget to take them at night time and took my morning meds and some pain relief and (little victories) got dressed and my breakfast with a nice cup of tea and watched TV. The post came and I got some postCrossing postcards and a couple of letters from pen pals. I fell asleep watching TV for a short while but felt better for it. After some lunch I had a bit of energy so pacing myself I got a bit of tidying done in my bedroom and I got another section of my distance learning course done too. My order of coffee arrived which was a nice surprise but the packaging was badly damaged so I took some photos and emailed it to the company and called them us to and they said they'd send me another 100 sachet section box so I now will have 200 sachets of coffee!! If you don't ask you don't get so it was worth making that little complaint! Then at 4pm I booked a taxi as I had the dentists at half 4. I really don't mind the dentists as the dentist I see and have seen ever since I've had teeth is amazing and has a few patients with hypermobility so he's aware of the issue is causes like jaw subluxtions so he uses smaller dental tools and gives me plenty of breaks so I've not got my mouth open wide for too long. I said to him that I attribute my lack of fear over the dentists down to him which he really appreciated. My jaw is now a little sore but I'm just chilling with an Almond Amaretto coffee and some paracetamol. This evening Dad, Mandy and I watched another one of the The Purge films which was good then Mandy an I squeezed in an episode of Desperate Housewives before the 10pm news which Dad likes to watch. I'm now winding down and hoping to get a better nights sleep than yesterday.
- Friday 13th July - Didn't sleep great again so had a lay in. I waited for the pharmacy to come and deliver my medication the got myself washed and dressed. It was a fairly unproductive day. Just resting and looking after myself.
- Saturday 14th July - Semi-productive day. Paced myself between getting jobs done and resting. Get a few letters written and tidied up a bit; also got some studying done. Also watched a really good film on Netflix called 'Before I Wake' which was really good.
- Sunday 15th July - Made it church this morning though my hip was playing up. After church when I got home and watched some TV then at half 2 I went to a BBQ hosted by one of my church friends whose in our Connect Group. The weather was lovely and I made the mistake of not getting changed so I was in jeans and a t-shirt so when I got back I got changed into something cooler and more comfortable. I was also pretty exhausted so I did start to watch something on Netflix but nodded off instead. Mandy thinks I might have a little bit of heat stroke. I had a late snack around 8pm (I don't usually eat that late) and went up to bed around had 9 and settled down with a cup of tea and Netflix on my iPad.
Gratitude list:
- Friends, family and carers
- Leaving the house
- Cups of tea and coffee
- Lay ins
- Pharmacy delivery (the driver is lovely and so helpful)
- Summer weather
